Session Details
Title: Back to School with Pompe: Real Talk for Real Parents
Date: Wednesday, August 13, 2025
Time: 9 AM CST / 10 AM EST
Moderator:
Colleen Sackos
Summary:
This time of year is a stressful time for every parent, as kids all over the country start preparing to go back to school. Add on the stress of managing Pompe disease, and it can easily become overwhelming. You are not alone! Come bringing your questions, concerns, and even your expertise, and let’s talk them out. Whether it’s setting up 504 plans, educating school staff, or balancing academics and medical care—this is a supportive space for real conversation and community connection.
*This session will be recorded and posted on the AMDA YouTube Channel, by attending, you are giving the AMDA permission to post your image on it’s channel.
Moderator Biography
Colleen Sackos
Colleen Sackos is a proud mother of three and educator with over 15 years of experience as a teacher and administrator in the elementary school setting in both Oregon and Arizona. Her youngest son, Axel, has Infantile Onset Pompe Disease and just finished kindergarten. She lives in Happy Valley, OR, and is grateful to be a part of the Pompe community: together we are strong!