August 3, 2023
CALL to participate in IPA Project Every Move Counts
At International Pompe Day the International Pompe Association kicked off the Every Move Counts project. This project focuses on raising
August 2, 2023
2024 Acid Maltase Deficiency Association (AMDA)/International Pompe Association (IPA) Conference date has been set!
Dear Pompe Warriors and Patient Community, We are excited to announce the upcoming 2024 Acid Maltase Deficiency Associate – International
August 2, 2023
Rare Artist Contest is now Open for Submissions
Enter July 23rd – August 31st at RareArtist.org The Rare Artist Program was established in 2010 to exhibit the unique
July 7, 2023
Amicus Therapeutics Announces Approval and Launch of New Pompe Disease Therapy in the European Union
PHILADELPHIA, June 27, 2023 (GLOBE NEWSWIRE) — Amicus Therapeutics (Nasdaq: FOLD), a patient-dedicated global biotechnology company focused on developing and commercializing novel
March 28, 2023
When A Hospital and A Patient Organization Work Together & The Value of Patient Reported Outcomes
Webinar Details Title: When A Hospital and A Patient Organization Work Together & The Value of Patient Reported Outcomes Date: Tuesday,