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A Personal Look at the Benefits of Having a Portacath

Session Details

Title: A Personal Look at the Benefits of Having a Portacath

Date: Thursday, March 19, 2026

Time: 1 p.m. CST / 2 p.m. EST

Moderator:
Lucas Garrett

Summary:
The concept of IV enzyme replacement therapies is not foreign to the Pompe community. For many patients, having a portacath makes the infusion process easier. We invite you to take part in this TWYPP that offers personal insight into the advantages of having a portacath. The session is being led by Lucas Garrett of the AMDA, a longtime user of portacaths.

Note: This discussion is for informational and community support purposes and is not medical advice.

Recording notice: This session will be recorded for internal review and possible educational use. If we share a recording publicly (including YouTube), we will post an edited version focused on general information and community tips, and we will remove participant personal stories and identifying details when possible.

If you prefer not to be recorded, you’re welcome to keep your camera off, change your display name, and/or participate via chat. If you have concerns, please contact us in advance.

Register Now!

Moderator Biography

Lucas Garrett

Lucas Garrett is an active performing musician, composer, and arranger in upstate New York. In addition to his work in the arts, he serves as a freelance journalist for a local newspaper, covering arts and culture.

Garrett has been living with Pompe disease for over three decades and continues to lead a full and creative life. Prior to joining the AMDA staff, he collaborated with Marsha Zimmerman and Tiffany House on several projects, including working on the AMDA’s Mentoring Program, compiling research articles into the organization’s database, and conceptualizing early AMDA webinar programming.

Lucas is currently enrolled in UC San Diego’s certificate program in copyediting. He holds a bachelor’s degree in applied mathematics from SUNY Empire State (2017) and an associate degree in general science from SUNY Adirondack (2013).