Jun 14, 2025 | ARCHIVES, NEWS
A Heartfelt Thank You to Our Community During this time of profound loss, the outpouring of love, support, and kindness from our community has been truly overwhelming. The passing of our beloved president, Tiffany, has been deeply felt by all of us at the Acid Maltase...
Jun 9, 2025 | PAST WEBINARS
Webinar Details Title: The Role of Genetic Counselors on the Pompe Disease Care Team Date: Monday, June 9, 2025 Time: 2 PM CT / 3 PM ET Speaker:Erin Huggins, MS, CGC Webinar Overview:This webinar focuses on a unique type of clinician: the genetic counselor. Genetic...
Jun 8, 2025 | ARCHIVES, NEWS
Tiffany Laurel House January 22, 1983 – May 25, 2025 Tiffany L. House, 42, of San Antonio, Texas, passed away on May 25, 2025, after a courageous battle with Pompe disease, a rare and progressive muscle disease. One of the first and most severe symptoms she...
