Aug 5, 2021 | PATIENTS
On January 3rd, 2010 I gave birth to a beautiful healthy baby girl weighing 7 pounds. We took Kaia home a few days later and for the first 3 months of her life she was a normal baby – gaining weight, feeding well, kicking her legs, laughing and cooing. At about three...
Jul 31, 2021 | RESEARCH
Pregnancy Outcomes in Late-Onset Pompe Disease Life Download file
Jul 31, 2021 | NEWS
Amicus’ AT-GAA Shows Clinically Meaningful & Significant Improvements in Both Musculoskeletal and Respiratory Measures in Late-Onset Pompe Disease Compared to Standard of Care in Pivotal Phase 3 PROPEL Study. Amicus Therapeutics, Inc. Download file Download...
Mar 26, 2020 | NEWS
With all of the questions and uncertainty surrounding the ongoing COVID-19 pandemic, the AMDA worked with Dr. Priya Kishnani and her group at Duke University on the following Question and Answer Fact Sheet. We hope that the Pompe Community will find the information...
Mar 19, 2020 | NEWS
Dear IPA Board of Directors, As I’m sure you are aware, the World Health Organization (WHO) has declared a pandemic in response to the COVID-19 (SARS-CoV-2) outbreak. Given this serious health situation, the US Centers for Disease Control and Prevention (CDC)...
