Cincinnati Children’s Hospital is conducting a study about the speech, language and swallowing problems in infants and children with Pompe disease. The study involves a survey which can be completed online that asks a variety of questions about the speech, language and swallowing function of the child with Pompe disease.
This study is being conducted by a team of Geneticists, a Genetic Counselor, a Speech-Language Pathologist and a Genetic Counseling Graduate Student at Cincinnati Children’s Hospital.
For more information, please view this flyer.