March 25, 2025
IPA/Erasmus MC Pompe Survey Update Webinar
Webinar Details Title: The Pompe Survey: Past Insights and Future Goals Date: Tuesday, March 25, 2025 Speakers:Lauren Dobischok, MScMichelle Kruijshaar,
February 26, 2025
Evolving Our Understanding of Pompe Disease – Data Driven Insights
Webinar Details Title: Evolving our understanding of Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More – data driven insights Date: Wednesday, February 26, 2025 Speaker:Ryan Colburn
January 28, 2025
2025 PCMA Pull for Pompe Fundraiser
The AMDA is excited to announce that the 14th Annual PCMA’s Pull for Pompe will take place on Saturday, April
January 14, 2025
2025 New Year Letter From AMDA President – Tiffany House
As we enter a new year, the Acid Maltase Deficiency Association (AMDA) wants to thank you for your unwavering support
January 13, 2025
The ABCs of Pompe Disease
Webinar Details Title: The ABCs of Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More Date: Monday, January 13, 2025 Speaker:Erin Huggins, MS, CGC Webinar Overview:Are you
December 29, 2024
2024 PCMA’s Pull for Pompe Photo Gallery
On Saturday, April 27, 2024, the PCMA (Precast Concrete Manufacturers Association) held it’s annual Pull for Pompe fundraiser at the
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More research. This
December 26, 2024
2024 AMDA/IPA International Conference Wrap-Up
We would like that thank you all for helping to make our 2024 AMDA/IPA Conference a HUGE success! With upwards
December 26, 2024
2024 AMDA/IPA International Pompe Patient and Scientific Conference Photo Gallery: May 5, 2024 Day 3 Photos
May 5, 2024: Day 3 – Conference Photos The final day of the 2024 AMDA/IPA International Pompe Patient & Scientific
December 26, 2024
2024 AMDA/IPA International Pompe Patient and Scientific Conference Photo Gallery: May 4, 2024 Day 2 Photos Part 1
May 4, 2024: Day 2 – Conference Photos: Part 1 Day 2 was a full day of sessions where we