January 13, 2025
The ABCs of Pompe Disease
Webinar Details Title: The ABCs of Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup that damages muscles and can affect breathing and, in some cases, the heart. Date: Monday, January 13, 2025 Speaker:Erin Huggins, MS, CGC Webinar Overview:Are you
December 29, 2024
2024 PCMA’s Pull for Pompe Photo Gallery
On Saturday, April 27, 2024, the PCMA (Precast Concrete Manufacturers Association) held it’s annual Pull for Pompe fundraiser at the
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This
December 26, 2024
2024 AMDA/IPA International Conference Wrap-Up
We would like that thank you all for helping to make our 2024 AMDA/IPA Conference a HUGE success! With upwards
December 26, 2024
2024 AMDA/IPA International Pompe Patient and Scientific Conference Photo Gallery: May 5, 2024 Day 3 Photos
May 5, 2024: Day 3 – Conference Photos The final day of the 2024 AMDA/IPA International Pompe Patient & Scientific
December 26, 2024
2024 AMDA/IPA International Pompe Patient and Scientific Conference Photo Gallery: May 4, 2024 Day 2 Photos Part 1
May 4, 2024: Day 2 – Conference Photos: Part 1 Day 2 was a full day of sessions where we
December 26, 2024
2024 AMDA/IPA International Pompe Patient and Scientific Conference Photo Gallery: May 4, 2024 Day 2 Photos Part 2
May 4, 2024: Day 2 – Conference Photos: Part 2 Previous Post: Day 2 – Conference Photos: Part 1 Next
December 26, 2024
2024 AMDA/IPA International Pompe Patient and Scientific Conference Photo Gallery: May 3, 2024 Rodeo and Dinner Part 2
May 3, 2024: Day 1 – Welcome Dinner & Rodeo: Part 2 Previous Post: Day 1 – Welcome Dinner &
December 26, 2024
2024 AMDA/IPA International Pompe Patient and Scientific Conference Photo Gallery: May 3, 2024 Rodeo and Dinner Part 1
May 3, 2024: Day 1 – Welcome Dinner & Rodeo: Part 1 After the workshops, everyone was chartered over to
December 24, 2024
2024 AMDA/IPA International Pompe Patient and Scientific Conference Photo Gallery: May 3, 2024 – Day 1 Conference
May 3, 2024 – Day 1 – Conference Photos On May 3, 2024, patients, their family members, care givers, researchers,