February 8, 2023
2023 PCMA Pull for Pompe Fundraiser
The AMDA is excited to announce that the 12th Annual PCMA’s Pull for Pompe will take place on Saturday, April
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This
December 13, 2022
Insurance 101 Webinar
Webinar Details Title: Insurance 101: Learning the Basics Date: Tuesday, December 13, 2022 Speaker:Amy DeStefanis, LCSW, CCM Webinar Overview:Insurance 101
November 1, 2022
An Open Letter to the Pompe Community
On October 28, Amicus Therapeutics issued a press release with an update on the progress of our Pompe program as
September 19, 2022
International Survey on Pompe Disease and Covid-19
Over the last 2 years the COVID-19 pandemic has had wide reaching effects on people all over the world. To