The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This
December 13, 2022
Insurance 101 Webinar
Webinar Details Title: Insurance 101: Learning the Basics Date: Tuesday, December 13, 2022 Speaker:Amy DeStefanis, LCSW, CCM Webinar Overview:Insurance 101
November 1, 2022
An Open Letter to the Pompe Community
On October 28, Amicus Therapeutics issued a press release with an update on the progress of our Pompe program as
September 19, 2022
International Survey on Pompe Disease and Covid-19
Over the last 2 years the COVID-19 pandemic has had wide reaching effects on people all over the world. To
September 16, 2022
In Utero ERT Webinar
Webinar Details Title: In Utero Enzyme Replacement Therapy for Lysosomal Storage Diseases Date: Friday, September 16, 2022 Speaker:Jeniffer L. Cohen,