June 14, 2025
A Heartfelt Thank You to Our Community
A Heartfelt Thank You to Our Community During this time of profound loss, the outpouring of love, support, and kindness
Webinar Details Title: The Role of Genetic Counselors on the Pompe Disease Care Team Date: Monday, June 9, 2025 Speaker:Erin
Tiffany Laurel House January 22, 1983 – May 25, 2025 Tiffany L. House, 42, of San Antonio, Texas, passed away
March 25, 2025
IPA/Erasmus MC Pompe Survey Update Webinar
Webinar Details Title: The Pompe Survey: Past Insights and Future Goals Date: Tuesday, March 25, 2025 Speakers:Lauren Dobischok, MScMichelle Kruijshaar,
February 26, 2025
Evolving Our Understanding of Pompe Disease – Data Driven Insights
Webinar Details Title: Evolving our understanding of Pompe Disease – data driven insights Date: Wednesday, February 26, 2025 Speaker:Ryan Colburn


