Webinar Details Title: The Role of Genetic Counselors on the Pompe Disease Care Team Date: Monday, June 9, 2025 Speaker:Erin
Tiffany Laurel House January 22, 1983 – May 25, 2025 Tiffany L. House, 42, of San Antonio, Texas, passed away
March 25, 2025
IPA/Erasmus MC Pompe Survey Update Webinar
Webinar Details Title: The Pompe Survey: Past Insights and Future Goals Date: Tuesday, March 25, 2025 Speakers:Lauren Dobischok, MScMichelle Kruijshaar,
February 26, 2025
Evolving Our Understanding of Pompe Disease – Data Driven Insights
Webinar Details Title: Evolving our understanding of Pompe Disease – data driven insights Date: Wednesday, February 26, 2025 Speaker:Ryan Colburn
January 28, 2025
2025 PCMA Pull for Pompe Fundraiser
The AMDA is excited to announce that the 14th Annual PCMA’s Pull for Pompe will take place on Saturday, April