Excerpt from August 30, 2010 press release . . . BioMarin Pharmaceutical Inc. (Nasdaq: BMRN) announced today that it has
Hi All, The AMDA has been working with Pfizer on supporting some proposed legislation in California that is intended to
August 10, 2011
News August 2010 Pompe Program Update from Genzyme
Genzyme would like to provide an update to the US Pompe community regarding the transition to commercial LumizymeTM (alglucosidase alfaA form of enzyme replacement therapy used to treat Pompe disease by providing a lab-made version of the GAA enzyme.)
July 12, 2011
2011 AMDA Pompe Disease Research Grant Opportunity
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup that damages muscles and can affect breathing and, in some cases, the heart. research. This
June 14, 2011
AMDA 2010 Research Grant Opportunity
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This
Webinar Details Title: Respiratory Muscle Strength Training in Pompe Disease Date: Monday, June 6, 2011 Speaker:Harrison N. Jones, PhD, BRS-S,
On June 6, 2011 the AMDA will host a webinar on Respiratory Muscle Strength Training in Pompe disease at 12:00pm
March 18, 2011
PCMA of Texas hosting “Pull for Pompe” Fundraiser
PCMA of Texas invites you to enjoy a day of family fun benefitting Acid Maltase Deficiency, also known as Pompe
Cincinnati Children’s Hospital is conducting a study about the speech, language and swallowing problems in infants and children with Pompe
Webinar Details Title: Genzyme’s Next Generation Pompe Treatment: Clinical Development Overview Date: Thursday, February 3, 2011 Speakers:Edward Kaye, MDAlison McVie-Wylie,