AMDA Webinar Program
The AMDA Webinar Program facilitates the exchange of information between the Pompe patient community and professionals that have expertise in the field.
Upcoming
Webinar
Check Back Soon for Upcoming Webinars
We don’t have a webinar scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced.
Upcoming Talking With Your Pompe Peeps Session
A Personal Look at the Benefits of Having a Portacath
Title: A Personal Look at the Benefits of Having a Portacath
Date: Thursday, March 19, 2026
Time: 1 p.m. CST / 2 p.m. EST
Moderator:
Lucas Garrett
Summary:
The concept of IV enzyme replacement therapies is not foreign to the Pompe community. For many patients, having a portacath makes the infusion process easier. We invite you to take part in this TWYPP that offers personal insight into the advantages of having a portacath. The session is being led by Lucas Garrett of the AMDA, a longtime user of portacaths.
Recording or reposting AMDA webinars or Talking With Your Pompe Peeps Sessions is prohibited without AMDA’s prior express written permission. Unauthorized use may result in takedown demands and legal action.
Video Library
Webinars
Talking With Your Pompe Peeps
AMDA/IPA International Pompe Patient & Scientific Conferences
2024 AMDA Pompe Conference
2019 AMDA Pompe Conference
2015 AMDA Pompe Conference
2011 AMDA Pompe Conference
2006 AMDA Pompe Conference
2001 AMDA Pompe Conference
Acid Maltase Deficiency Association
For the AMDA videos: All Rights reserved. No part of the AMDA's videos may be reproduced or transmitted in any form or by any means, electronic or mechanical, without the written permission of the copyright holder.
If you are interested in learning more about Pompe Disease and would like to make a contribution in support of necessary research, please contact us at:
info@amda-pompe.org
THE AMDA
PO Box 700248
San Antonio, Texas 78270 USA