We don’t have any Talking With Your Pompe Peeps sessions scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced.
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Guide the Next Pompe Conversation
We’d love your input! Use this form to share feedback on past sessions, suggest topics you’d like to see covered, or volunteer as a moderator for an upcoming discussion. Your voice helps us shape meaningful conversations for the Pompe community.
Past Sessions
Campus Ready: Two Perspectives on College Life with Pompe Disease
Session DetailsTitle: Campus Ready: Two Perspectives on College Life with Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup that damages muscles and can affect breathing and, in some cases, the heart. Date: Wednesday, July 29, 2026 Moderators:Haley HayesMargaret Koehler Session Overview:From campus accessibility and disability services to managing infusionsA method of delivering medication through an IV. and enzymeA protein that helps the body carry out chemical reactions....
Therapeutic Outlets
Title: Therapeutic Outlets: How Hospitals Can Reduce Stays and Improve Patients’ Prognosis
Date: Wednesday, July 1, 2026
Time: 1 p.m. CT / 2 p.m. ET
Moderators:
Trevor Hedrich
Summary:
Because of the interconnected link between mental health and physical health, hospitals should focus on mental health as another avenue to improving patients’ stays. In this session we will discuss the idea of therapeutic outlets, their strengths and weaknesses, their challenges, and what we can do individually and as a group to help support this idea.
Let’s Talk Diet — The Real Talk
Title: Let’s Talk Diet — The Real Talk
Date: Thursday, May 28, 2026
Moderators:
AMDA Staff
Summary:
We all know eating well matters, but let’s be honest, actually sticking to a diet is hard. Life gets busy, cravings are real, and sometimes the foods we’re “supposed” to eat just don’t excite us. Living with Pompe adds another layer to that challenge, and nobody gets that better than your Pompe Peeps.
This session is all about having an open, honest conversation about why diet matters for our community, the everyday struggles of staying on track, and — the fun part — swapping recipes that actually taste good. We’ll kick things off with a few recipes to get the ideas flowing, but we really want to hear from you. What’s on your plate? What works? What doesn’t?