We are honored to share this moment recognizing Tiffany House as a recipient of the RareVoice Award for State Advocacy.

The AMDA is excited to announce that the 15th Annual PCMA’s Pull for Pompe fundraiser will take place on Saturday,

Webinar Details Title: Making sense of research studies and registries Date: Thursday, February 19, 2026 Time: 7 p.m. CST / 8

The Acid Maltase Deficiency Association (AMDA) is deeply grateful to the individuals, families, and organizations who contributed in 2025. Your

Webinar Details Title: Grief Happens in Rare Disease: Let’s Talk About it Already Date: Thursday, January 15, 2026 Speaker:Lisa Keefauver,