Webinar Details Title: Making sense of research studies and registries Date: Thursday, February 19, 2026 Time: 7 PM CST / 8

The Acid Maltase Deficiency Association (AMDA) is deeply grateful to the individuals, families, and organizations who contributed in 2025. Your

Webinar Details Title: Grief Happens in Rare Disease: Let’s Talk About it Already Date: Thursday, January 15, 2026 Speaker:Lisa Keefauver,

At Sanofi’s inaugural Global Rare Impact Awards ceremony held on November 14, 2025, in Vienna, three extraordinary leaders were recognized

We don’t have a webinar scheduled at the moment, but more exciting sessions are on the way! Check back soon