2024 AMDA/IPA International Conference

We are excited to announce that the 2024 AMDA/IPA International Pompe Patient and Scientific Conference will take place in San Antonio, Texas from May 3rd-5th, 2024.

Registration for the Conference is now open! Please click here for the 2024 Conference In Person Registration Form. Each person (patient, family, speaker, patient organization representative, industry representative, and physician) should complete the Online Registration Form.

There is no Conference Registration Fee for patients and their families. For Industry Representatives, please email info@amda-pompe.org for more information.

A tentative agenda can be found at: 2024 Agenda. We are still in the process of finalizing sessions and speakers. As soon as more information is available, it will be posted to the AMDA website.

If you have any questions, we have put together a Frequently Asked Question (FAQ) page. If you still have questions after reading the FAQs, please send us an email at: info@amda-pompe.org.

Note on Hotel Reservations with the host hotel:

If rooms at the host hotel run out, there are several hotels nearby. For a list of nearby hotels, click here.

To modify any existing group reservation at the host hostel, please work directly through Bonnie Ng.  You can either call or email Bonnie Ng directly.

Phone: 210-272-1525 (Monday-Friday)

Email: Bonnie.Ng@ihg.com

*The AMDA will only pay for up to 3 nights at the host hotel for people registered with the AMDA*

2024 AMDA/IPA Conference Confirmed Speakers

We are excited to announce some of our confirmed speakers for the conference!

Dr. Laura Case – United States

Dr. Yin-Hsiu (Nancy) Chien – Taiwan

Dr. Benjamin Cocanougher – United States

Elena Compalati – Italy

Dr. Dominic D’Agostino – United States

Rosario Di Marco – Italy

Zack DuMond – United States

Dr. Andreas Hahn – Germany

Erin Huggins – United States

Dr. Harrison Jones – United States

Amanda Joost – United States

Dr. Virginia Kimonis – United States

Dr. Priya Kishnani – United States

Dr. Pascal Laforet – France

Dr. Federico Mingozzi – United States

Dr. Tiziana Mongini – Italy

Dr. Giancarlo Parenti – Italy

Dr. Pim Pijnappel – the Netherlands

Dr. Nina Raben – United States

Dr. Arnold Reuser – the Netherlands

Dr. Mark Roberts – United Kingdom

Dr. Benedikt Schoser – Germany

Dr. Mark Tarnopolsky – Canada

Dr. Antonio Toscano – Italy

Dr. Linda van den Berg – the Netherlands

Dr. Hannerieke van den Hout – the Netherlands

Dr. Nadine van der Beek – the Netherlands

Dr. Ans van der Ploeg – the Netherlands

Dr. Chester Whitley – United States


Become a Sponsor of the Conference

Please see the Sponsorship Opportunities PDF for Sponsorship opportunities that are available.

To discuss participating as a Sponsor of the Conference, please contact: info@amda-pompe.org.


 Acid Maltase Deficiency Association


Your generous contribution will go a long way into improving the quality of life of Pompe Disease Patients worldwide. Donations go towards Pompe Disease Research.

If you are interested in learning more about Pompe Disease and would like to make a contribution in support of necessary research, please contact us at:



PO Box 700248

San Antonio, Texas 78270 USA