June 14, 2010
Pompe Patient Meeting Hosted by Columbia University
Dr. Maryam Banikazemi of Columbia University is hosting a meeting for Pompe patients on July 16, 2010 in New York,
May 27, 2010
Pompe Program Update—FDA Approves Lumizyme
On May 24, 2010 the FDA approved Genzyme’s LumizymeA form of enzyme replacement therapy used to treat Pompe disease by providing a lab-made version of ... More for the treatment of patients with Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More who are over
CAMBRIDGE, Mass. – Genzyme Corporation (Nasdaq: GENZ) announced today that the FDA has granted U.S. marketing approval for LumizymeTM (alglucosidase
January 21, 2010
Pompe Disease: The Real Story
To read a factual account of the true history of Pompe DiseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More, please visit Pompe Disease—The Real Story.
January 20, 2010
AMDA Press Release Regarding Extraordinary Measures
The AMDA issued a press release regarding the film, Extraordinary Measures. The press release can be found here. In addition,
December 7, 2009
ATAP Inclusion/Exclusion and List of Study Sites
This information was complied from the information provided on clinicaltrials.gov. To read, please download file by clicking here.
December 4, 2009
December 2009 Pompe Program Update
Genzyme would like to provide an update to the US Pompe community about the status of the Alglucosidase AlfaA form of enzyme replacement therapy used to treat Pompe disease by providing a lab-made version of ... More Temporary
November 27, 2009
Influenza Vaccinations and Pompe Disease
Guidelines from Erasmus Medical Centre, Rotterdam, the Netherlands As a guideline we recommend that all patients with Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More are
November 21, 2009
Genzyme invites the Gaucher, Fabry, Pompe and MPS I communities to a Town Hall Meeting
Genzyme Manufacturing Update Genzyme invites all patients to participate in a forum to discuss recent FDA reports and media attention
November 17, 2009
November 2009 Pompe Program Update from Genzyme
Genzyme would like to provide an update to the US Pompe community about the status of the application for Lumizyme™
