info@amda-pompe.org

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It is difficult to say what is impossible for the dreams of yesterday are the hopes of today and the reality of tomorrow. – Robert H. Goddard

About the AMDA

The Acid Maltase Deficiency Association formed to assist in funding research and to promote public awareness of Acid Maltase Deficiency, also known as Pompe’s Disease.
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Check Back Soon for Upcoming Webinars

Check Back Soon for Upcoming Webinars

We don’t have a webinar scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced.

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Upcoming Talking With Your Pompe Peeps Session

Spooky Soirée – Enjoying Halloween with PD for You and Your Kiddos Part 2

Spooky Soirée – Enjoying Halloween with PD for You and Your Kiddos Part 2

Title: Spooky Soirée – Enjoying Halloween with PD for You and Your Kiddos Part 2
Date:  Wednesday, October 22, 2025
Time: 1 PM CST / 2 PM EST
Moderator:
TBD
Summary:
Calling all Pompe Parents! Are you stuck thinking up costume ideas? Have you made an awesome one that you would like to share? This is your chance to share and help each other. Halloween can be a challenging time for many parents when it comes to finding the right costumes. For our Pompe kiddos, there can be added challenges when mobility issues are involved. Do you need help? Do you have suggestions? Join us and share! Please share your past costume photos!

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WHAT IS POMPE DISEASE?

Pompe disease is one of a family of 49 rare genetic disorders known as Lysosomal Storage Diseases or LSDs. Pompe disease is also known as Acid Maltase Deficiency or Glycogen Storage Disease type II.

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If you are a newly diagnosed patient, please email info@amda-pompe.org and someone will return your message within 24-48 hours.

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Your generous contribution will go a long way into improving the quality of life of Pompe Disease Patients worldwide. Donations go towards Pompe Disease Research.

 Acid Maltase Deficiency Association

GET INVOLVED

Your generous contribution will go a long way into improving the quality of life of Pompe Disease Patients worldwide. Donations go towards Pompe Disease Research.

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REGISTER WITH THE AMDA

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If you are interested in learning more about Pompe Disease and would like to make a contribution in support of necessary research, please contact us at:

info@amda-pompe.org

THE AMDA

PO Box 700248

San Antonio, Texas 78270 USA