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Burnout, Creativity, and Rest
For me, music can be one of the best...
Tiffany House and Maryze Schoneveld van der Linde Honored at Sanofi’s Global Rare Impact Awards
At Sanofi’s inaugural Global Rare...
Morgan’s Story: When Hope Met Hurricane Katrina
Editor's NoteIn the early years of...
Grief and Rare Disease: Recognizing Loss and Building Grief Literacy
This past May, our hearts broke twice....
Closing the Gaps: Pompe Disease Newborn Screening and the Importance of RUSP Alignment
A Milestone for Pompe Families This...
Three Decades of Impact: Celebrating 30 Years of the AMDA
A Legacy of Leadership, Love, and...
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