We don’t have any Talking With Your Pompe Peeps sessions scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced.
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Guide the Next Pompe Conversation
We’d love your input! Use this form to share feedback on past sessions, suggest topics you’d like to see covered, or volunteer as a moderator for an upcoming discussion. Your voice helps us shape meaningful conversations for the Pompe community.
Past Sessions
The Holidays – How to deal with stressors and fun family traditions
Title: The Holidays – How to deal with stressors and fun family traditions
Date: Thursday, November 21, 2024
Time: 12 PM CST / 1 PM EST
Moderator:
Tiffany House
Spooky Soirée – Enjoying Halloween with PD for You and Your Kiddos
Title: Spooky Soirée – Enjoying Halloween with PD for You and Your Kiddos
Date: Tuesday, October 22, 2024
Time: 12 PM CT
Moderator: Tiffany House
Summary:
Calling all Pompe Parents! Are you stuck thinking up costume ideas? Have you made an awesome one that you would like to share? This is your chance to share and help each other. Halloween can be a challenging time for many parents when it comes to finding the right costumes. For our Pompe kiddos, there can be added challenges when mobility issues are involved. Do you need help? Do you have suggestions? Join us and share! Please share your past costume photos!
Also related to Halloween… have you found creative ways to deal with the massive candy haul? None of us want our kiddos to miss out on these experiences, but how can we modify when needed?
Balancing Pompe (School, Work, and Life): How Do You Balance Yours?
Title: Balancing Pompe (School, Work & Life): How Do You Balance Yours?
Date: Tuesday, September 24, 2024
Time: 12 PM CT
Moderator: Tiffany House
Summary:
This Open Forum Discussion will focus on exploring the various ways members of the Pompe community juggle all of the things life throws their way. Come join the conversation!