We don’t have any Talking With Your Pompe Peeps sessions scheduled at the moment, but more exciting sessions are on the way! Check back soon for details, or sign up for our newsletter to be notified when new webinars are announced.
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Guide the Next Pompe Conversation
We’d love your input! Use this form to share feedback on past sessions, suggest topics you’d like to see covered, or volunteer as a moderator for an upcoming discussion. Your voice helps us shape meaningful conversations for the Pompe community.
Past Sessions
Back to School with Pompe: Real Talk for Real Parents
Title: Back to School with Pompe: Real Talk for Real Parents
Date: Wednesday, August 13, 2025
Time: 9 AM CST / 10 AM EST
Moderator:
Colleen Sackos
Summary:
This time of year is a stressful time for every parent, as kids all over the country start preparing to go back to school. Add on the stress of managing Pompe disease, and it can easily become overwhelming. You are not alone! Come bringing your questions, concerns, and even your expertise, and let’s talk them out. Whether it’s setting up 504 plans, educating school staff, or balancing academics and medical care—this is a supportive space for real conversation and community connection.
Have You Ever Considered Getting a Service Dog?
Session DetailsTitle: Have You Ever Considered Getting a Service Dog? Date: Friday, March 7, 2025 Time: 1 PM CST / 2 PM EST Moderator: Margaret Koehler Summary:Join me for this Talking With Your Pompe Peeps session, where we’ll dive into everything you need to know...
Kaizen Your New Year’s Resolutions: Small Steps, Big Success!
Title: Kaizen Your New Year’s Resolutions: Small Steps, Big Success!
Date: Wednesday, February 19, 2025
Time: 12 PM CST / 1 PM EST
Moderator: Matt Zimmerman
Summary:
“A new year, a new you.” Studies show about 80 percent of new year’s resolutions are abandoned by the month of February. How are you faring keeping up with yours? If you are struggling along with the rest of us, this session is for you! Pick up those abandoned resolutions and join us as we look at how adapting the Japanese business principle of “Kaizen” can help you with self-improvement, time management, and habit formation. Make 2025 the year you commit to keeping those resolutions!