The AMDA maintains a patient registry to help determine the number of people affected by the disease and to provide the medical and scientific community with access to the patient population for treatment of Acid Maltase Deficiency.

AMDA is not affiliated with any one medical group or organization. Equal access to the patient list for treatment of AMD will be available to the scientific and medical community.

However, no information will be released without prior consent of the patient or the legal guardian of the patient.

Following is the patient registration form. Please fill out the form and click Submit to register:

AMDA Professional Registry

Please fill out the form

 Acid Maltase Deficiency Association


Your generous contribution will go a long way into improving the quality of life of Pompe Disease Patients worldwide. Donations go towards Pompe Disease Research.

If you are interested in learning more about Pompe Disease and would like to make a contribution in support of necessary research, please contact us at:


PO Box 700248

San Antonio, Texas 78270 USA