Driving Research Forward
Supporting breakthroughs in Pompe diseaseA rare genetic disease in which the body cannot properly break down glycogen, leading to buildup tha... More treatment and care.
Advocating for Patients
Giving patients and families a voice and the resources they need.
Sharing Knowledge
Connecting the Pompe community with the latest education and expert insights.
Meet The Staff
Andrea Faris
Director
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Juls Williams
Liaison
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Marsha Zimmerman
Patient AdvocateA person who helps patients and families navigate care, information, services, and support. More
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Matthew Zimmerman
Director of Communications/IT
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Tara Mancine
Lead Social Media Manager
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Morgan Burroughs
Social Media Coordinator
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