Connecting Patients, Families, and Experts in Pompe Disease

Driving Research Forward

Supporting breakthroughs in Pompe disease treatment and care.

Advocating for Patients

Giving patients and families a voice and the resources they need.

Sharing Knowledge

Connecting the Pompe community with the latest education and expert insights.

Meet The Staff

Andrea Faris

Andrea Faris

Director

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Juls Williams

Juls Williams

Liaison

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Marsha Zimmerman

Marsha Zimmerman

Patient Advocate

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Matthew Zimmerman

Matthew Zimmerman

Director of Communications/IT

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Tara Mancine

Tara Mancine

Lead Social Media Manager

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Morgan Burroughs

Morgan Burroughs

Social Media Coordinator

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