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Past AMDA Webinars
National Patient-Teacher Registry: A New Educational Concept
Title: National Patient-Teacher Registry: A New Educational Concept
Date: Wednesday, December 9, 2020
Speaker:
Mark Korson, PhD, VMP Genetics, LLC, Director of Physician Support, Director of Education
Webinar Overview:
In general, medical students and post-graduate trainees receive little teaching about metabolic disease. At VMP Genetics, we believe in the power of “patient-teaching” and are bringing patients and families into lectures and presentations – at conferences and in the classroom. While doctors talk facts, patients tell stories. Story-telling is a more compelling teaching method with better recall over time than didactic lecturing. We also believe that doctors are more likely to make a diagnosis if they have already seen a patient and hear her/his story. We are looking to collaborate in this effort with patient foundations and similar communitites.
The Common C.-32-13T G Splicing Variant of GAA Gene
Title: The common c.-32-13T>G splicing variant of GAA gene: from functional characterization to the identification of new therapeutic targets for Pompe disease.
Speaker:
Andrea Dardis, PhD
Spark Therapeutics Gene Therapy Research Webinar
Title: Spark Therapeutics Gene Therapy Research Webinar
Date: Tuesday, September 25, 2025
Speakers:
Federico Mingozzi, PhD – Chief Scientific Officer
Paul Monahan, MD – Translation Medicine Leader, Metabolic Disorders
Amy Fisher, MS, CGC – Patient Advocacy Lead
Webinar Overview:
Take this opportunity to learn more about Spark as a company and the field of gene therapy research.