Check Back Soon for Upcoming Webinars

Title: Aquatic Exercise: Applications for Pompe Disease
Date: August 26, 2022
Time: 1:30 PM CT / 2:30 PM ET
Speaker:
Dr. Kendra Lucas, PT, DPT, Aquatic Physical Therapist at Kettering Health, Ohio
Webinar Overview:
The unique properties of water provide surprising benefits for individuals struggling with gait difficulty, muscle weakness, cardiorespiratory impairments, balance problems and other symptoms associated with Pompe disease. Aquatic physical therapy offers a safe alternative to land-based programs. The water’s buoyancy off-loads joint pressure, allowing you more freedom to move with less energy exertion. Join Dr. Lucas to learn much more about how aquatic exercise can help you stay active and healthy so you can live your best life.

Title: POMPE REGISTRY: 18 YEARS OF LEADERSHIP AND CONTRIBUTIONS

Date: Monday, April 11, 2022

Speaker:
Joseph Bender, MD, MBA, Global Head of Rare Disease Registries

Danielle Dong, ScM, CGC, Global Operations and Advocacy Lead Rare Disease Registries

Webinar Overview:
The Sanofi Genzyme Pompe Registry is a global, observational, and voluntary program designed to track natural history and outcomes of patients diagnosed with Pompe disease.

*After multiple conversations with Sanofi, the AMDA regrets to inform the Community that the recording of the recent AMDA Webinar on the Sanofi Pompe Registry will be removed from the AMDA website on May 31, 2022.

However, as a result of these conversations, the AMDA is pleased to say that Sanofi has committed to developing educational material regarding the Registry. We hope that this will be available soon, and will keep the Community posted on developments.

Title: Informative Session on the Covid 19 Vaccine with Questions and Answers
Date: Thursday, January 14, 2021
Speaker:
Dr. Priya Kishnani