To read a factual account of the true history of Pompe Disease, please visit Pompe Disease—The Real Story.

The AMDA issued a press release regarding the film, Extraordinary Measures. The press release can be found here. In addition,

This information was complied from the information provided on clinicaltrials.gov. To read, please download file by clicking here.

Genzyme would like to provide an update to the US Pompe community about the status of the Alglucosidase Alfa Temporary

Guidelines from Erasmus Medical Centre, Rotterdam, the Netherlands As a guideline we recommend that all patients with Pompe disease are