November 30, 2012
Pompe Community Loses Valued Advocate
On the 30th November 2012, Helen Walker OAM (Member of the Order of Australia) passed away. Helen was a board
October 29, 2012
News 2012 AMDA/Genzyme Patient Diagnosis Survey Results
The path to diagnosis can be long and complicated and patients are frequently misdiagnosed along the way. In an effort
September 4, 2012
News Dr. Arnold Reuser Decorated by Queen of Netherlands
On Thursday, August 30, 2012 Dr. Arnold Reuser was decorated as a Knight in the Order of the Netherlands Lion
July 30, 2012
2012 AMDA Research Grant
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This
July 25, 2012
2012 PCMA Pull for Pompe Fundraiser Results
I am very excited to announce that the 2012 PCMA’s Pull for Pompe was a HUGE success. The PCMA of