AMDA Publications
The AMDA is dedicated to empowering the Pompe community with resources that are clear, supportive, and easy to access. We’ve gathered both AMDA-created materials and trusted resources from other organizations to help patients and families stay informed and connected.
Brochures
AMDA NBS Brochure
Updated: April 2024
Questions & Answers
Enzyme Activity: Diagnostic Uses, Best Practices, and Other Questions
Updated: June 2024
Pamphlets
About Pompe Disease
Updated: April 2024
Accessing Care and Resources
Updated: April 2024
Classic IOPD
Updated: April 2024
LOPD
Updated: April 2024
Mental Health and Pompe
Updated: April 2024
Newborn Screening and Pompe Disease
Updated: April 2024
Special Needs Trust Fund
Updated: December 2023
Treating Pompe Disease
Updated: April 2024
Non-AMDA Publications
Guides & References
Acid Maltase Deficiency Association
For the AMDA videos: All Rights reserved. No part of the AMDA's videos may be reproduced or transmitted in any form or by any means, electronic or mechanical, without the written permission of the copyright holder.
If you are interested in learning more about Pompe Disease and would like to make a contribution in support of necessary research, please contact us at:
info@amda-pompe.org
THE AMDA
PO Box 700248
San Antonio, Texas 78270 USA